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- Related Links
Related Links
North Dakota Department of Health Children's Special Health Services
Parents and Expectant Parents
ABCs of Healthy Pregnancy (NCBDDD, CDC)
Not all birth defects can be prevented, but a woman can take some actions that increase her chance of having a healthy baby. Many birth defects happen very early in pregnancy, sometimes before a woman even knows she is pregnant. Remember that about half of all pregnancies are unplanned.
American Medical Association Family History
Describes the importance of family medical history in disease prevention and provides links to resources on how to collect family history information and generate a simple pedigree.
An advocacy organization for children and adults with mental retardation and related disabilities (Down Syndrome, Autism, etc.). Provides support groups for parents and siblings as well.
North Dakota Asperger Syndrome family support group.
Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.
Dakota Center for Independent Living
Recognizes self-determination for people with disabilities and creates the environment in which it is achieved.
Assists individuals with disabilities and special needs, and their families by helping someone improve physical mobility, return to work or simply gain greater independence for everyday living. Easter Seals offers a variety of services to help people with disabilities address life's challenges and achieve personal goals. To locate Easter Seals nearest you, search in your state. A list of offices will appear.
A North Dakota chapter of families speaking out for children with special needs.
Learn more about Fragile X syndrome and the Fragile X Research Foundation, which supports research to find a treatment and a cure for Fragile X.
The information provided is current and is useful to all health care professionals, patients, family members, and members of the public about genetic conditions and the genes responsible for those conditions. This information was updated May 15, 2009.
Provides mobility, educational and recreational opportunities to physically and mentally challenged children, adults and their families.
The Hospital for Sick Children (SickKids)
Provides information about science in a friendly format for kids. Also includes a section called "Ability Online" for kids with disabilities and chronic and acute illnesses to meet others with similar experiences.
Nonprofit consumer driven organization for individuals of any age with a disability. No charge for services. Provides information, referral services, assist with obtaining adaptive equipment, advocacy, IEP assistance, independent living skills, ADA accessibility surveys.
IPAT (Interagency Program for Assistive Technology)
Technical assistance to reduce barriers and build the support systems necessary for individuals in North Dakota to obtain and use AT devices and services.
Created by The Nemours Foundation, KidsHealth provides families with accurate, up-to-date, and jargon-free health information they can use.
LD Online has gathered an extensive collection of resources on learning disabilities and ADHD. We hope these links, organizations, and books provide the information you need.
Legal Assistance of North Dakota
Legal assistance in civil, non fee-generating cases for low income residents in North Dakota.
•Under age 60 call toll-free 1-800-634-5263
Monday–Thursday between 9 a.m.–3 p.m. CST.
•Age 60+ call toll-free 1-866-621-9886
Monday–Friday between 8 a.m.–5 p.m. CST.
A statewide, not-for-profit social service agency providing a wide variety of services such as A.A.S.K., family based services for families in which one or more children are at risk for being placed outside the home, independent living skills, healthy families, and other programs working with families are available.
Serves the entire state of North Dakota, (701) 280-9474 or Toll Free North Dakota Only: (800) 362-9474, E-Mail
March of Dimes Birth Defects Foundation
The March of Dimes works to improve the health of babies by preventing birth defects and infant mortality through programs, research, community services, education, and advocacy.
National Birth Defects Prevention Network
The mission of the National Birth Defects Prevention Network is to establish and maintain a national network of state and population-based programs for birth defects surveillance and research to assess the impact of birth defects upon children, families, and health care; to identify factors that can be used to develop primary prevention strategies; and to assist families and their providers in secondary disabilities prevention.
National Healthy Mothers, Healthy Babies Coalition
The National Healthy Mothers, Healthy Babies Coalition (HMHB) works to raise public awareness of the basic components of prenatal care, early care, good nutrition, avoidance of drugs including alcohol and tobacco, and promotion of breast feeding.
North Dakota Division of Community Services
Provides the people of North Dakota with effective, efficient and customer-oriented administration of federal and state programs for community development, energy efficiency/renewable energy, housing and self-sufficiency.
North Dakota Special Education
The mission of the North Dakota Department of Public Instruction is to ensure a uniform, statewide system for effective learning as illustrated through its goals.
Spina Bifida Association of America
The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected individuals.
Physicians
American College of Medical Genetics
The ACMG is the primary society for clinical and medical geneticists. The website has sections focusing on news and news releases, CD-ROM products, conferences, educational materials, and publications such as Genetics in Medicine and Standards and Guidelines for Clinical Genetics Laboratories (the latter is available for free download for educational purposes).
This site is a free, peer-reviewed journal/atlas/portal to information on the Internet about genes, cytogenetics, and the clinical genetics of cancer and related diseases. It includes "entities by theme" (leukemias, solid tumors, genes, and cancer-prone diseases), "entitities by chromosome," reviews, case reports, a portal to databases and journals, and educational/consumer health resources.
Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.
Emory Department of Human Genetics
Provides copyrighted information for educational purposes only and should not be used as a substitute for information from a physician. Questions about this material should be discussed with your physician or a genetic counselor.
The March of Dimes has created this website to aid health care providers, particularly those working with preconception/prenatal, infant/child, and adolescent services, with understanding and using genetics and genetic services in their practice. It includes numerous tools and guides, a self-assessment quiz to determine your facility with genetics, online CME, and an FAQ and glossary for genetics topics. Free registration is required for most resources on the page.
The information provided is current and is useful for all health care professionals, patients, family members, and members of the public about genetic conditions and the genes responsible for those conditions.
Dealing with a health issue is stressful. When looking for answers, medical librarians are experts in helping find the information needed to provide some answers. Go local links directly to websites or contact information for health care services.
Human Genome Project Links Page
Little People of America, Inc.
A nonprofit organization that provides support and information to people of short stature and their families. There are resources pertaining to dwarfism and LPA, medical information, and links to other dwarfism-related sites.
National Coalition for Health Professional Education in Genetics
This coalition was established by the American Medical Association, the American Nurses Association, and the National Human Genome Research Institute to promote the education of health professionals in genetics. Among other resources, NCHPEG sponsors GROW: Genetic Resources on the Web and the Core Competencies in Genetics Essential for All Health-Care Professionals, Medline and other Literature Searches.
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials and provides information and research services in all areas of biomedicine and health care.
NHS National Genetics Education and Development Centre
Uses real experiences from individuals, family members, carers and health professionals to highlight the relevance of genetics to practice and the impact conditions can have. Presented in their own words, the stories are available to read online, print (PDF), and sections of some stories are also available as video clips (downloadable to use in teaching). Accompanying stories are activities, points for reflection and links to further information that can be used in the classroom or to support self-directed learning.
North Dakota Department of Health
Office of Genomics and Disease Prevention: Welcome to HuGENet
Human Genome Epidemiology Network, or HuGENetT is a global collaboration of individuals and organizations committed to the assessment of the impact of human genome variation on population health and how genetic information can be used to improve health and prevent disease.
A free online service providing you with access to the very best Web resources for education and research, evaluated and selected by a network of subject specialists.
University of Kansas Clinical Genetics
Adult Genetic Risks
Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.
FORCE: Facing Our Risk of Cancer Empowered
A nonprofit organization for women with increased risk of cancer due to family history and genetic status, and for members of families in which a BRCA mutation may be present.
Family Health History (Genetic Alliance)
Family health history is especially important to individuals living with genetic and rare conditions. Most, if not all, diseases have some genetic component. Whether specific genes cause or increase one's risk for a condition, knowledge of family health history increases an individual's chances of making positive health choices.
The information provided is current and is useful for all health care professionals, patients, family members and members of the public about genetic conditions and the genes responsible for those conditions.
Dealing with a health issue is stressful. When looking for answers, medical librarians are experts in helping find the information needed to provide some answers. Go Local links directly to websites or contact information for health care services.
Health and Human Service Professionals
A Place To Remember is committed to publishing and providing uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby.
The mission of the AMA is to support families through advocacy and education.
Centers for Disease Control & Prevention
Their mission: Collaborating to create the expertise, information, and tools that people and communities need to protect their health —through health promotion, prevention of disease, injury and disability, and preparedness for new health threats.
Providing patients, family members and members of the public current information about clinical research studies which they may be able to join.
Clinical trials are research studies in which new treatments—drugs, diagnostics, procedures, vaccines, and other therapies—are tested in people to see if they are safe and effective.
Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.
Food and Drug AdministrationPromote and protect the public health by helping safe and effective products reach the market in a timely way, and monitoring products for continued safety after they are in use.
Clinical genetics site for genetic professionals that contains clinical, research and educational resources for genetic counselors, as well as clinical and medical geneticists, with links to professional societies and genetic support groups.
The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members—all working together to promote healthy lives for everyone impacted by genetics.
The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies.
Genetic Conditions/Rare Conditions Information Site
Site provides information pertaining to lay advocacy and support groups, information on genetic conditions/birth defects for professionals, educators and individuals.
Patient friendly, reliable up-to-date information about genetic conditions.
Dealing with a health issue is stressful. When looking for answers, medical librarians are experts in helping find the information needed to provide some answers. Go local links directly to websites or contact information for health care services.
A free guide to reliable consumer health and human services information, developed by the U.S. Department of Health and Human Services.
Healthfinder can lead you to selected online publications, clearinghouses, databases, websites, and support and self-help groups, as well as government agencies and not-for-profit organizations that produce reliable information for the public.
Indian Health ServiceIHS is the principal federal health care provider and health advocate for Indian people. Its goal is to assure that comprehensive, culturally acceptable personal and public health services are available and accessible to American Indian and Alaska Native people.
Information for Genetic Professionals
Information for genetic professionals, University of Kansas Medical Center, with clinical, research, and educational resources for genetic counselors, clinical geneticists and medical geneticists.
Journal of Medical Genetics - Human Genome Journal
JMG is a leading international human genome journal. Register FREE to receive monthly table of contents e-mail alerts. Journal of Medical Genetics is part of the BMJ Publishing Group.
Journal Watch: Pediatrics and Adolescent Medicine
Edited and reviewed by more than 80 physicians, Journal Watch regularly combs 180 medical journals for important findings in pediatrics.
Kids Count is a project of the Annie E. Casey Foundation and is a national and state-by-state effort to track the status of children in the U.S.
An information and support network for people with facial difference, their families, friends and professionals.
Obtain fact sheets on birth defects and pregnancy.
Gives state by state information about perinatal health statistics.
A comprehensive statewide database of community services.
Their mission: To uncover new knowledge that will lead to better health for everyone. NIH works toward that mission by
- Conducting research in its own laboratories
- Supporting the research of non-federal scientists in universities, medical schools, hospitals, and research institutions throughout the country and abroad
- Helping in the training of research investigators
- Fostering communication of medical information
National Organization for Rare Disorders
National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research, and service.
National Society of Genetic Counselors
Promotes the professional interests of genetic counselors and provides a network for professional communications.
North Dakota Department of Health
Public health information available online.
North Dakota Chapter of the American Academy of Pediatrics
Dedicated to the health of all children. Committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. Site maintained by Dr. Bernard J. Hoggarth, MD, FAAP, Grand Forks, North Dakota.
Office of Research on Women's Health
This branch of the National Institutes of Health promotes, stimulates, and supports efforts to improve the health of women through biomedical and behavioral research.
Online Mendelian Inheritance in Man (OMIM), a catalog of human genes and genetic disorders.
The website of Larry Burd, Ph.D., Educational Behavioralist, Pediatric Therapy, Altru Health Institute, Grand Forks, North Dakota.
A non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening. A greater understanding and awareness of these tests and disorders will help to prevent unnecessary complications since most can be effectively treated when caught early.
SHARE—(Pregnancy and Infant Loss Support Inc.)
SHARE—Pregnancy and Infant Loss Support, Inc. is available to those whose lives are touched by the tragic death of a baby through miscarriage, stillbirth or newborn death.
An introduction to toxic chemicals and environmental health risks you might encounter in everyday life, in everyday places.
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.
Unique is a source of information, mutual support and self-help to families of children with any rare chromosome disorders, including deletions, trisomy, balanced translocations, unbalanced translocations, rings, inversions, duplications, tetrasomy, monosomy, triploidy, isodicentric, marker, mosaic, sex chromosome aneuploidy (e.g. 47,XXX 47,XYY 48,XXXX 49,XXXXY), etc.
Breast and cervical cancer screening program for women with financial and insurance barriers. Danielle Kenneweg, Coordinator, Cancer Prevention and Control, North Dakota Department of Health.
Teachers
American Eugenics Movement Picture Archive
Dolan DNA Learning Center
2004
Grades 9–12 and adults. Examine the chronicle of how society dealt with mental illness and other "dysgenic" traits.
Basic Genetics in First and Second Grades
Yale-New Haven Teachers Institute
2003
Grades 1–2. Covers topics such as inheritance from parents, sameness vs. differentness, family medical charts, and size differences. Worksheets are included.
Cold Spring Harbor Laboratory, funded by Josiah Macy Jr. Foundation
2002
Grades 9–12 and adults. Flash Player required. "An animated primer on the basics of DNA, genes and heredity. Sections: Classical Genetics, Molecules of Genetics, Genetic Organization and Control.
Dolan DNA Learning Center
2003
Grades 9–12 and adults. Free registration and teacher’s guide to create a personalized Web page
DNA Kit and Science Museum Activities
National Human Genome Research Institute
2004
Describes a kit designed for science centers and museums, providing them with DNA demonstrations and hands-on experiments involving genetics and genomics. It is available at 30 museums in the U.S. Topics include DNA model building, DNA extraction from wheat germ, and DNA electrophoresis, sequencing simulation, sequence analysis, and examination of genetic traits.
Exploring Our Molecular Selves
Human Genome Project
Grades 9–12 and adults. A free multimedia educational kit for high school students or older. Some are available to download or for viewing online. Module topics include the timeline of genetic milestones, gene variations, gene sequencing, DNA, chromosomes, medical genetics, and ethical, legal and social aspects of genetics.
Gene Gateway—Exploring Genes and Genetic Disorders
Department of Energy
Grades 9–12 and adults. Gene Gateway, originally designed as a Web companion to the popular Human Genome Landmarks poster, is a collection of guides and tutorials designed to help students and other novice users get started with some of the resources that make these data available to the public. Poster ordering information is listed. This website introduces various Internet tools that anyone can use to investigate genetic disorders, chromosomes, genome maps, genes, sequence data, genetic variants, and molecular structures.
Gene Therapy: An Animated Tutorial
Sumanas, Inc.
Requires Flash Player
Genetic Education Modules for Teachers
Human Genome Project
Grades 9–12 and adults. Includes How to Sequence a Genome; DNA from the Beginning; Genetic Mind Reader; Genetic Timeline; and Ethical, Legal and Social Implications of Genetic Knowledge.
DiscoveryEducation.com
Grades 9–12 and adults. Students will discover ethical issues surrounding the practice of genetic engineering in reproductive medicine and understand key terms and concepts related to the science of genetic engineering
Dolan DNA Learning Center
Grades 9–12 and adults. This site provides biochemical methods and computer tools to allow students to use their own DNA "fingerprints" as a starting point in the study of human evolution.
Teachers' Genetics Resource Kit
Provides a variety of resources for high school teachers and other genetic educators. The kit contains lesson plans, extension and follow-up activities, assessment strategies and tools. Many of these resources are available in PDF form for download, or links are provided for access to resources on the Internet, including ordering DVDs for use in the classroom.
An introduction to toxic chemicals and environmental health risks you might encounter in everyday life, in everyday places.
Students
Basics on Genes and Genetic Disorders
KidsHealth
Grades 6–12
Careers in Genetics and the Biosciences
Human Genome Project
National Institutes of Health
2004
National Human Genome Research Institute
2003
Book explores the world of genetics, DNA, the Human Genome Project, the ethical, legal and social implications of genetic research, and the future of genomics. Divided into chapters.
HowStuffWorks
2003
Grades 9-12 & Adults. To understand topics like biotechnology and genetic engineering, you need to understand cells.
HowStuffWorks
HowStuffWorks
Explores the possibility that biotechnology could give parents the ability to pre-choose their children's physical and personality traits by manipulating the genes of the embryo.
HowStuffWorks
HowStuffWorks
2004
Grades 9–12 and adults. This site explores the theory of evolution and how it works. It also examines several important areas that show holes in the current theory—places where scientific research will be working in the coming years in order to complete the theory.
HowStuffWorks
The combination of all of the versions of all of the genes in a species is called the gene pool of the species.
HowStuffWorks
Human Genetics and Medical Research
National Institutes of Health
2003
Cracking the genetic code allowed us to study diseases at the molecular level, which is increasing our knowledge of potential preventions and treatments for diseases. Since then, genetics has become central to the science of medicine.
National Human Genome Research Institute
2004
A knockout mouse is a laboratory mouse in which researchers have inactivated, or "knocked out," an existing gene by replacing it or disrupting it with an artificial piece of DNA. The loss of gene activity often causes changes in a mouse's phenotype.
Science Fair Project Resource Guide
Internet Public Library
Annotated list of selected science fair websites.
KidsHealth
Grades 4–8
You and Your Genes: Making It in a Tough Environment
National Institute of Environmental Health Science
Grades 6–8
Disorder-Specific: Down Syndrome
Disorder-Specific: Huntington Disease
Huntington's Disease Society of America
National Institute of Neurological Disorders and Stroke (NINDS)