A Place to Remember |
www.aplacetoremember.com |
A Place To Remember is committed to publishing and providing uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby. |
American Medical Association |
http://www.ama-assn.org |
The mission of the AMA Alliance is to partner with physicians to promote the good health of America and support the family of medicine. |
Centers for Disease Control & Prevention |
www.cdc.gov |
Their mission: To promote health & quality of life by preventing & controlling disease, injury, and disability.
Website provides definitions of various diseases or conditions, their treatment & prevention in "Health Topics A-Z." |
Clinical Trials |
www.clinicaltrials.gov |
Providing patients, family members & members of the public current information about clinical research studies which they may be able to join.
Clinical trials are research studies in which new treatments - drugs, diagnostics, procedures, vaccines, & other therapies - are tested in people to see if they are safe & effective. |
Department of Health & Human Services |
www.os.dhhs.gov |
The Department of Health & Human Services is the United States government's principal agency for protecting the health of all Americans & providing essential human services, especially for those who are least able to help themselves. |
| Down Syndrome Links |
www.medicine.nodak.edu/genetics/
DownSyndromeLink.htm |
Recommended links for Down Syndrome by parents with a child who has Down Syndrome. |
Food & Drug Administration |
www.fda.gov |
Promote & protect the public health by helping safe & effective products reach the market in a timely way, & monitoring products for continued safety after they are in use. |
| Gene Info |
http://www.kumc.edu/gec/geneinfo.html |
Clinical Genetics Site for genetic professionals contains clinical, research, and educational resources for genetic counselors, as well as clinical and medical geneticists, with links to professional societies, and genetic support groups. |
Genetic Alliance |
www.geneticalliance.org |
The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics.
The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies. |
| Genetic Conditions/Rare Conditions Information Site |
http://www.kumc.edu/gec/support/groups.html |
Site provides information pertaining to lay advocacy and support groups, information on genetic conditions /birth defects for professionals, educators, and individuals. |
| Genetics Home Reference |
http://ghr.nlm.nih.gov |
Patient friendly, reliable up-to-date information about genetic conditions. |
Healthfinder |
www.healthfinder.gov |
A free guide to reliable consumer health and human services information, developed by the U.S. Department of Health and Human Services.
Healthfinder® can lead you to selected online publications, clearinghouses, databases, Web sites, & support & self-help groups, as well as government agencies & not-for-profit organizations that produce reliable information for the public . |
HRSA
Health Resources and Services Administration |
http://www.hrsa.gov/healthliteracy/training.htm |
The interactive training course,aims to raise the quality of provider-patient interactions by teaching providers and their staff how to gauge and respond to their patients' health literacy, cultural background, and language skills. |
Indian Health Service |
www.ihs.gov |
IHS is the principal federal health care provider & health advocate for Indian people.
Its goal is to assure that comprehensive, culturally acceptable personal & public health services are available & accessible to American Indian & Alaska Native people. |
| Information for Genetic Professionals |
http://www.kumc.edu/gec/geneinfo.html |
Information for genetic professionals, University of Kansas Medical Center, with clinical, research, and educational resources for genetic counselors, clinical geneticists, and medical geneticists
|
Journal of Medical Genetics
Human
Genome Journal |
www.jmedgenet.com |
JMG is a leading international human genome journal. Register FREE to receive monthly table of contents email alerts. Journal of Medical Genetics is part of the BMJ Publishing Group. |
| Journal Watch Pediatrics & Adolescent Medicine |
http://pediatrics.jwatch.org/ |
Edited and reviewed by more than 80 physicians, JWatch regularly combs 180 medical journals for important findings in Pediatrics. |
Kids Count |
www.kidscount.org |
KIDS COUNT, is a project of the Annie E. Casey Foundation, and is a national and state-by-state effort to track the status of children in the U.S.
For statistics for children in North Dakota, click on the link below:
NDKidscount |
| Let's Face It |
www.faceit.org |
An information and support network for people with facial difference, their families, friends and professionals.
|
| March of Dimes |
http://www.marchofdimes.com |
Obtain fact sheets of birth defects and pregancy |
March of Dimes Peristats |
http://peristats.modimes.org |
Gives state by state information about perinatal health statistics. |
| MinnesotaHelp.info |
www.MinesotaHelp.info |
A comprehensive statewide database of community services. |
National Institutes of Health |
www.nih.gov |
Their mission: To uncover new knowledge that will lead to better health for everyone. NIH works toward that mission by
1) Conducting research in its own laboratories
2) Supporting the research of non-Federal scientists in universities, medical schools, hospitals, & research institutions throughout the country & abroad
3) Helping in the training of research investigators
4) Fostering communication of medical information |
National Organization for Rare Disorders |
www.rarediseases.org |
National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. |
| National Society of Genetic Counselors |
www.nsgc.org |
Promotes the professional interests of genetic counselors and provides a network for professional communications. |
North Dakota Department of Health |
www.health.state.nd.us/ |
Public Health information available online. |
North Dakota Chapter of the American Academy of Pediatrics |
www.ndaap.org |
Dedicated to the health of all children.
Committed to the attainment of optimal physical, mental, & social health & well-being for all infants, children, adolescents, & young adults.
Site maintained by Dr. Bernard J. Hoggarth, MD, FAAP, Grand Forks, North Dakota |
Office of Research on Women's Health |
www4.od.nih.gov/orwh |
This branch of the National Institutes of Health promotes, stimulates, & supports efforts to improve the health of women through biomedical & behavioral research |
| OMIM |
http://www.louisville.edu/~emsmig01/omim/ |
Online Mendelian Inheritance in Man (OMIM)
A catalog of human genes and genetic disorders. |
Online Clinic |
www.online-clinic.com |
The website of Larry Burd, Ph.D., Educational Behavioralist, Pediatric Therapy, Altru Health Institute, Grand Forks, ND |
Save Babies Through Screening |
www.savebabies.org |
A non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening . A greater understanding and awareness of these tests and disorders will help to prevent unnecessary complications since most can be effectively treated when caught early. |
SHARE
(Pregnancy and Infant Loss Support Inc.) |
www.nationalshareoffice.com |
SHARE Pregnancy and Infant Loss Support, Inc. is available to those whose lives are touched by the tragic death of a baby through miscarriage, stillbirth or newborn death. |
Substance Abuse & Mental Health Services Administration |
www.samhsa.gov |
The Federal agency charged with improving the quality and availability of prevention, treatment, & rehabilitative services in order to reduce illness, death, disability, & cost to society resulting from substance abuse & mental illnesses. |
| Tox Town |
www.toxtown.nlm.nih.gov/ |
An introduction to toxic chemicals and environmental health risks you might encounter in everyday life, in everyday places |
| Tuberous Sclerosis Alliance |
www.tsalliance.org |
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected. |
Unique |
www.rarechromo.org |
Unique is a source of information, mutual support and self-help to families of children with any rare chromosome disorders including deletions, trisomy, balanced translocations, unbalanced translocations, rings, inversions, duplications, tetrasomy, monosomy, triploidy, isodicentric, marker, mosaic, sex chromosome aneuploidy (e.g. 47,XXX 47,XYY 48,XXXX 49,XXXXY etc.) etc. |
Women's Way |
www.womensway.net |
Breast and Cervical Cancer screening program for women with financial and insurance barriers. Danielle Kenneweg, Coordinator, Cancer Prevention and Control, ND Department of Health |
Organization of Teratogen Information Services |
www.otispregnancy.org/index.html |
Provides comprehensive & multidisciplinary resources for medical consultation on prenatal exposures. Teratogen services in the patient's area interpret information on known & potential reproductive risks into risk assessments which are communicated to individuals of reproductive age & their health care providers. |
