The Arc Upper Valley |
www.thearcuppervalley.com |
An advocacy organization for children and adults with mental retardation and related disabilities (Down Syndrome, Autism, etc.). Provides support groups for parents and siblings as well. |
| AutismND |
www.AutismND.org |
Autism Society of ND works with parents and professionals regarding Autism. AutismND can help connect you with others in your area struggling with similiar issues. |
| Red River Valley Asperger Support Group |
www.rrvasperger.org |
Website of a ND Asperger Syndrome family support group. |
Bismarck Public Schools FEET
(Family Educator Enhancement Team) |
(701) 224-8276 or 223-5470 |
Parents & educators working together to improve educational opportunities for children with disabilities. FEET sponsors trainings for parents and educators, distributes a newsletter, provides parents as mentors, purchases books and videos for the public library. |
Bismarck
Red Door Pediatric Therapy |
701-222-3175 |
Provides speech/language therapy in a professional yet comfortable child-centered atmosphere. In addition to speech and language therapy they offer functional communication enhancement program, known as the Doorstep Program, which focuses on further development of a child's functional, educational, behavioral and social development. They are located at: 210 S. 12th Street #3 , Bismarck, ND 58504, 701-222-3175. |
Breast Cancer Support |
http://www.hersource.com/breast/
06/6b/supportgroup.cfm?State=ND |
Searching for a safe place to meet people to talk about your experience dealing with breast cancer?
At this site you may also learn about breast cancer diagnostic procedures such as mammograms. Read about breast cancer treatment options (radiation, chemotherapy and breast surgery). Learn about breast cancer genetics, support groups, make a smart breast health plan and review many other items. |
| Children's Special Health Services
|
http://www.state.nd.us/humanservices
/services/medicalserv/cshs/ |
Serves children with special health care needs and their families.
To access website click on departments human services children's special health services
|
| Community Action
ND
| http://www.state.nd.us/
dcs//communitymap.html |
Provides the people of North Dakota with effective, efficient and customer oriented administration of federal and state programs for: Community Development, Energy Efficiency/Renewable Energy, Housing and Self Sufficiency |
| Dakota Center for Independant Living |
http://www.dakotacil.org/ |
The Dakota Center for Independent Living
believes in self-determination for people
with disabilities and creates the environment
in which it is achieved. |
| Down Syndrome Links |
Down Syndrome Links |
Recommended links for Down Syndrome by parents with a child who has Down Syndrome. |
Early Childhood Special Education for Children with Disabilities
Ages 3-5 |
www.dpi.state.nd.us/speced
/ecsecda/index.shtm |
|
Easter Seals |
http://www.easter-seals.org |
Assists individuals with disabilities and special needs, and their families by helping someone improve physical mobility, return to work or simply gain greater independence for everyday living, Easter Seals offers a variety of services to help people with disabilities address life's challenges and achieve personal goals.
To locate Easter Seals nearest you, search in your state. A list of offices will appear. |
|
www.med.und.nodak.edu/f2f |
The Family to Family Network is a support network based on the philosophy that parents of children with special needs, who have successfully adapted to their child's disability, are the best guides for new parents. Experienced families serve as "Veteran families" to provide a unique resource for other families with children who have recently been diagnosed with a disability.
|
Family Voices |
www.fvnd.org
|
A North Dakota Chapter of families speaking out for children with special needs.
|
|
Currently NO North Dakota web site
National web site: www.ffcmh.org |
A support network and family-driven advocacy organization which ensures that children's mental health remains a highly visible, national priority. Individuals, families, institutions, communities, and legislative bodies at all levels work collaboratively and creatively to promote success for each child. Call 1-800-492-4951 for information about services.
|
|
www.hopeinconline.org |
Provides mobility, educational and recreational opportunities to physically and mentally challenged children, adults and their families. |
Huntington Disease
Support Group |
NDHDSupport |
Support group for individuals, care providers and family members meets second Saturday every month 10:30-Noon Rooms E & F (next to Cafeteria) at Altru Hospital in Grand Forks. |
| Independence, Inc. |
www.independencecil.org
Email: agency@independencecil.org |
Nonprofit consumer driven organization for individuals of any age with a disability. No charge for services. Provides information, referral serices, assist with obtaining adaptive equipment, advocacy, IEP assistance, independent living skills, ADA assessibility surveys. |
Infants and Toddlers with Disabilities
|
http://www.ndearlyintervention.com |
Program is designed to identify children at risk in the earliest stages, when the right help can make all the difference. If you know a child who may benefit from this program, please contact the Department of Human Services.
|
IPAT
(Interagency Program for Assistive Technology)
|
www.ndipat.org |
Technical assistance to reduce barriers and build the support systems necessary for individuals in North Dakota to obtain and use AT devices and services.
|
| Learning Disabilities Online |
http://www.ldonline.org/finding_help
/local_org/ndakota.html |
The LD OnLine Report offers news about learning disabilities and about the latest events on our Web site. LD OnLine and The LD OnLine Report are made possible in part by generous support from Lindamood-Bell Learning Processes and The Mitsubishi Electric America Foundation. |
| Legal Assistance of North Dakota |
www.legalassist.org
|
Legal assistance in civil, non fee-generating cases for low income residents in North Dakota.
Tollfree: 1-877-232-5263 |
Lutheran Social Services |
http://www.lssnd.org/ |
A statewide, not-for-profit social service agency providing a wide variety of services such as A.A.S.K., family based services for families in which one or more children are at risk for being placed outside the home, independent living skills, healthy families, and other programs working with families are available. |
Make-A-Wish Foundation |
http://www.wish.org/ |
Make-A-Wish Foundation of North Dakota
Serves the entire state of North Dakota
Office Phone: (701) 280-9474
Toll Free North Dakota Only: (800) 362-9474
E-Mail: ndakota@wish.org
|
| Maternal & Child Health Bureau |
http://www.mchb.hrsa.gov |
Helpful web sites for families with children with special health care needs. |
| Medline Plus |
http://www.nlm.nih.gov/medlineplus/ |
A service of the US National Library of Medicine and the National Institues of Health. Provides information with 750 health topics on condtions, diseases and wellness, information about your prescription and other over the counter medicines, herbs and supplements, provides a medical encyclopedia, dictionary, news, directories and resources for health related issues. |
Mental Health Association
|
www.mha-nd.org |
Addresses all aspects of mental health and mental illness. NDMHA works to improve the mental health through advocacy, education, research and service. |
ND Center fpr Persons with Disabilities
NDCPD
|
http://ndcpd.misu.nodak.edu/home.htm |
To provide leadership and innovation that advances the state-of-the-art and empower people with disabilities to challenge expectations, achieve personal goals and be included in all aspects of community life. |
| ND Department of Health |
www.health.state.nd.us |
1.888.246.2675 (English)
1.888.246.2857 (Spanish)
1.866.874.2646 (Hearing impaired) |
| ND Department of Public Instruction |
http://www.dpi.state.nd.us/speced |
Provides leadership for a comprehensive system of educational opportunities for all people of North Dakota. |
| North Dakota Parent Assistance and Supportive Schools ~NDPASS~ |
www.pathfinder.minot.com
Email: ndpass1@minot.com |
North Dakota's source for parent information. NDPASS is a federally funded Parent Information Resource Center who works with regular education children, and not with Special Education. |
| North Dakota Special Education (DPI) |
www.dpi.state.nd.us/dpi/speced/index.htm |
Special Education, Dept. of Public Instruction
600 East Boulevard Ave. Dept 201
Bismarck, ND 58505
(701) 328-2277
TTY: (701) 328-4920 |
|
http://www.macil.org |
Provides Information and referral services, peer counseling, advocacy, independent living skills training, community education, equipment repair, recreational activities, and home modifications. Services provided in Minnesota and North Dakota. |
| ND Partners In Policymaking |
www.partnersinpolicymaking.com
/resources.html |
The purpose of the program is twofold: To teach best practices in disability, and the competencies of influencing public officials.
Contact Partners in Policymaking
Joyce Smith, Program Coordinator
North Dakota Partners in Policymaking
Dakota CIL
3111 E. Broadway Avenue
Bismarck, ND 58501
(701) 222-3636; (800) 489-5013
E-mail: joyces@dakotacil.org
Web: www.dakotacil.org
|
|
http://www.ndpass.minot.com |
NDPASS is a project under the Pathfinder Family Center umbrella. NDPASS is a federally funded Parent Information Resource Center who works with regular education children, and not with Special Education, which is the case with Pathfinder PTI. Pathfinder PTI provides definitions of disabling conditions, systems, policies, procedures, entitlement and eligibility. Provides information regarding nonprofit organizations and support groups, laws, procedures pertaining to special education. Provides family and teacher support materials, as well as public awareness on disabilities. Provides direct assistance through understanding parent involvement with schools in special education, understanding individualized Education Program (IEP) development and content. |
| PKU.com |
www.PKU.com |
PKU.com has taken on the challenge of creating a comprehensive online resource for the PKU community. Phenylketonuria. An inherited metabolic defect in protein metabolism. In PKU, the liver is unable to convert phenylalanine to tyrosine, resulting in a buildup of phenylalanine in the blood, which eventually passes into the brain, causing mental retardation and other neurological problems. |
Prairie Harvest Foundation
|
http://www.prairieharvest.net/ |
Provides community based services to vulnerable adults and children. Quality of life is enhanced through improved living environment, access to services and programs, and the opportunity for employment. |
Protection & Advocacy Agency
|
www.ndpanda.org |
The Protection & Advocacy Project is concerned with asserting the human, civil and legal rights of people with disabilities, especially those who are not able to protest deprivations on their own behalf. The Project operates in a manner which is consistent with the belief that people with disabilities have the same legal and constitutional rights and guarantees as every other American citizen. |
Ronald McDonald House |
http://www.rmhcfargo.org/index.htm |
Provides lodging and emotional support to parents and siblings of children requiring medical treatment who also benefit by knowing their families are close by |
Salvation Army |
http://www.redshield.org/ |
The Salvation Army, an international movement, is an evangelical part of the universal Christian Church. Its message is based on the Bible. Its ministry is motivated by the love of God. Its mission is to preach the gospel of Jesus Christ and to meet human needs in His name without discrimination.
Program services are constantly expanding and include financial assistance, counseling, and casework services when necessary. |
Special Olympics |
http://www.specialolympics.org |
Special Olympics is dedicated to empowering individuals with mental retardation to become physically fit, productive and respected members of society through sports training and competition.
Special Olympics North Dakota
2616 South 26th Street
Grand Forks, ND 58201
(701) 746-0331
(701) 772-1265 (Fax) |
| Kathy Meagher, Executive Director |
|
Social Security Administration |
http://www.ssa.gov/denver/index.htm |
Disability benefits are provided under two programs: the Social Security disability insurance program and the Supplemental Security Income (SSI) program. Children may qualify for disability benefits under either the Social Security program or the SSI program. |
The Village Family Service Center
|
http://www.thevillagefamily.org
|
The Village provides a full range of services including counseling programs, adoption, financial counseling, unplanned pregnancy counseling and mentoring programs like the Big Brother Big Sister Program.
The Village has offices throughout North Dakota and Minnesota, and serves people nationwide through The Village Business Institute. |
| TCVCFS support Group |
Email: tcvcfsgroup@hotmail.com |
Support group for parents who have a child with
Velocardiofacial Syndrome (22q11.2 syndrome) |
| Tox Town |
www.toxtown.nlm.nih.gov |
An introduction to toxic chemicals and environmental health risks you might encounter in everyday life, in everyday places. |
| Tuberous Sclerosis Alliance |
www.tsalliance.org |
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected. |
| Vocational Rehabilitation |
(701) 328-8950
(800) 755-2745 (In ND)
(701) 328-8968 (TTY)
|
Vocational Rehabilitation
600 S. 2nd Street, Suite 1B
Bismarck, ND 58504-5729 |
Women's Way |
www.womensway.net |
Breast and Cervical Cancer screening program for women with financial and insurance barriers. Danielle Kenneweg, Coordinator, Cancer Prevention and Control, ND Department of Health |
