Raw Data

Survey Summary
Seventy-nine percent of the returned Health Care Professional Genetic Survey respondents were aware of genetic services in North Dakota , and 46% stated that they had referred patients for clinical genetic services. Reasons for not referring included, a lack of awareness of genetic services, the patient did not ask about genetic counseling, or patient was referred to the primary care provider.

Barriers listed that have prevented, or hindered a clinical genetics referral include: transportation issues for the patient/family, language, distance of genetic clinics from rural communities, lack of knowledge of genetic services offered, and contract problems with Indian Health Services.

In assessing the genetic knowledge of health care professionals, 48% of respondents stated that they have had 1-4 hours of continuing education related to medical genetics, while 38% have had no additional continuing education hours. Eighty-six percent indicated that they would be interested in more information on genetics. Topics of most interest included: screening/testing for genetic disorders, diagnosis and management of common genetic disorders/ birth defects, prenatal screening/diagnosis, birth defect prevention, and cancer genetics. Other topics of interest included: expanded newborn screening, genetic counseling referrals, genetic testing for adult onset conditions and family/caregiver needs.

Most respondents would like to obtain more genetic knowledge through conferences and newsletters, however, 31% requested web based instruction and 10% requested Interactive Video Network (IVN). This survey indicates a need for educating health care professionals about clinical genetic services available in North Dakota , as well as to expand genetic services to the rural areas. Education for health care professionals is preferred through conferences, workshops and newsletter and is not limited to any particular interest, but most providers would like more information as to the management of common genetic conditions.