The Care Coordination Program provides community-based management services to help families access services and resources in their community, and when needed, across multiple service delivery settings. Public health nurses provide care coordination services to a broad population of children with physical, developmental, behavioral or emotional conditions in five eastern counties of the state which includes children with genetic disorders.

The Information Resource Center provides public information services to families and service providers in order to increase access to health care information and resources free of charge. This includes information about genetic disorders as requested.

The Metabolic Food Program is mandated to provide medical food and low-protein modified food products to certain individuals with Phenylketonuria and Maple Syrup Urine Disease in order to increase access to necessary dietary treatment therapies. Males under age 22 and females under age 45 receive formula at no cost, while others outside those age groups can receive formula at cost. When it is determined medically necessary, State level staff develop policies and procedures to guide the program, maintain inventory, fill client orders upon request, and provide a variety of state level care coordination services. Low protein modified food products are also provided at no cost to males (under age 22) and females (under age 45) who are receiving medical assistance.

The Multidisciplinary Clinic Program provides coordinated management of various chronic pediatric health conditions that are best addressed using a comprehensive, team approach. CSHS directly administers or sponsors clinics for the following genetic conditions: Cleft Lip and Palate, Metabolic Disorders, and Myelodysplasia. CSHS nursing staff coordinates some of the clinics while others are provided through contracts with other health systems such as the Down Syndrome and Muscular Dystrophy Clinics.

The Russell-Silver Syndrome Program mandates payment for medical food and services related to growth hormone treatment for individuals with Russell-Silver Syndrome through age 18. Services are provided at no cost regardless of income but there is a cap.

The Specialty Care Program helps families pay for specialty care diagnostic and treatment services, such as genetic evaluations. Families apply for services through their county social service office and must meet financial eligibility criteria.

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